Well, I guess pulling my hair out at Walmart was worth it...
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Never heard of Pierre Robin Sequence? Not a big surprise. Here's the story of one little boy born with this rare genetic issue.
Jairus Donovan
The Story of Jairus
On March 30th, 2001, our first child was born with Pierre Robin Sequence at McMaster Children's Hospital in Hamilton, Ontario. This is my account of his first few months of life.
Jairus has not been so fortunate.
As blogs are usually posted in backwards chronological order, Jairus' story had been difficult to read. Therefore, I've set this up with a book template. To your right are the links in order of when they occurred. At this time, you'll have to keep coming back to this page in order to access the next chapter.
The story is not complete. I'm still working, from time to time, to transfer the account from my journal. Right now, his hospital time is mostly accounted for, which is March 30th, 2001 until May 28th, 2001.
It's my hope that a family newly dealing with a diagnosis of PRS for their child might find this and benefit from our experiences.
Blessings,
~Leslie
About Me
- Les
- Born again, simple life pursuing, homeschooling, scrapbooking, music teaching, closet writing, natural health admiring, homebirthing, organization yearning Child of God.
2 comments:
...totally worth it... thanks for directing me here, it's good to catch up (and on the other blog too...) shannon xx
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